Is Xywav worth pushing through the side effects?

I have IH. I’ve been prescribed Xywav for maybe 6 months or so. I was up to 3g twice nightly however I would turn my alarm off for the second dose and not take the second dose at all. Even if I put my alarm across the room… it’s literally second nature to turn off alarms in my sleep. So my doctor changed me to the once nightly dose and I’m at 4.5g now. I was up to 6g nightly however I had a weird instance of waking up completely paralyzed except I could flail my head around. I couldn’t catch my breath, heart rate was INSANELY high. I eventually made it to the bathroom bc I had to pee so badly and then I threw up everything and passed out on the bathroom floor. Ngl I thought that was it for me 😭 I called the pharmacy the next day and they weren’t even that concerned. They just said oh probably too high of a dose… so I’ve been doing the 4.5 and haven’t had THAT bad of a reaction since, but I frequently wake up in the middle of the night with the SERIOUS need to pee, or I have to throw up. Both of which are side effects I’ve read. I have some increased energy during the day but I still can’t get out of bed in the mornings which is the biggest struggle of IH for me. The Xyrem/Xywav nurse case manager encouraged me to just continue adjusting the dosage with my doctor. But idk if I can keep doing this med… last night I apparently was SO asleep that my body didn’t get the wake up signal that I needed to pee and I fully peed myself. A grown adult. NOT fun 😭 Feels like my last straw with this medication I won’t lie. Has anyone else dealt with the side effects and pushed through? Is it worth it? I just don’t know…